It will NEVER be fair that girlie has to go through the pain and discomfort of seizures.  It will never be fair that girlie’s body becomes stiff, all the muscles tensing up, breathing stopped, loss of entire body control.  It will NEVER be fair that it happens over and over and over again.  It will NEVER be fair that… Continue reading fair?

the dead list

Girlie and I have started taking Wednesday nights as “girl only” nights, while the boys have their activities for the evening. She and I rarely get to choose a television show, as we rarely have the remote, lol.  So, on Wednesdays we have started watching “speechless“. At first we started watching out of curiosity, as… Continue reading the dead list

The journey

Several summers ago, my oldest had his arm in a cast all summer, so we had to find a new hobby besides water activities (girlie does not do well in heat and has a caregiver a few afternoons each week, so I can take the boys to do something “normal”). So, that summer we investigated… Continue reading The journey

one word

Girlie can say one word with her mouth.  Sure she can communicate with her computer, to a degree.  Unfortunately, technology can be limited, depending on the battery, the weather, and other issues (like how much time mom and dad have to put in to set up and maintenance, lol). Technology is not fool proof. With… Continue reading one word

oh the fear

“Be not afraid” Wait. What? Seriously? “Be not afraid” Fear just is. FEAR engulfs, FEAR surrounds, FEAR takes over. FEAR comes in the middle of the night. FEAR steals my sleep, FEAR robs my joy, FEAR lies just beneath the surface all day. “Be not afraid” But Lord, Give it up? Afraid of the future, Afraid… Continue reading oh the fear

the limited

“But the serpent said to the woman, “You will not surely die. 5 For God knows that when you eat of it your eyes will be opened, and you will be like God, knowing good and evil.”” Genesis 3:4-5 (ESV) Satan trys to sell the same old lies, “agreements” as John Eldredge calls them. Satan generates a statement,… Continue reading the limited