Girlie has 2 brothers, who in her eyes and ours are extremely intelligent. They excel at whatever academic tasks they are given, often it seems so without an effort. But for whatever reason, unknown to us, both of their academic talents are downplayed by the private christian schools they have attended. These schools appear to… Continue reading to celebrate ….. or not?
I had no idea this was coming. Every single provider that my daughter sees is basically coming to a close relative to her 18th birthday just a few short months away. It started with the pediatricians office dropping her because she has a medical exemptions to V’s. So, in the hunt for a new primary… Continue reading pediatric abandonment
A place that we all come to from time to time. The emotional brick wall, caused by actions/inactions others. As a special needs parent, I hit the wall for various things. Small things: people around but no one opens the door for us when I have girlie out in the chair. Big things: caregiver for… Continue reading the brick wall
Fall is beginning around here, the leaves just beginning to thin in the woods around our home. The underbrush seems to be the first to thin, and moves on to medium size trees, and then the largest trees. As the woods thin, the landscape looks so different. Things that were not visible before, become visible. … Continue reading the scales
25 years ago these 2 said “I do” Those 2 had big dreams, and were excited about continuing life, together, “desiring to do ministry together”. Not knowing, life would try everything to tear them apart. These 2 learned through the years, some valuable lessons. At year 6, these 2 learned about the trustworthiness of God… Continue reading 25 years ….
Having a 15 year old medically fragile child, I am experiencing one of my “firsts” with doctors retiring. Hoorah, girlie’s GI doctor retired and is spending more time with her grand babies and her husband. This doctor was the one that placed girlie’s g-tube at the age of 2, which feels like a very long… Continue reading retirement …
Today was wheelchair cleaning day, since school starts for girlie tomorrow. It is truly amazing to me how dirty a wheelchair can get just over a few weeks in the summer. I try to clean every few months, or sooner if I happen to notice it being extra dirty. Girlie’s wheelchair is highly customizable, which… Continue reading cleaning all the parts
Joseph had a coat of many colors. His brothers were jealous, beat him, left him for dead and in a hole, came back later and sold him in to slavery because they were too chicken to actually kill him, but were fine with making sure their dad thought he was dead. Joseph spent years in… Continue reading Special needs = revival
When I was a little girl, I stayed sometimes with my mom’s mom. My “grandmother” I called her, as I wanted to give her a little more formal title than my cousin did, who called her “maw maw”, ugh. She was strict with me as a little girl, and would often threaten a “whipping” with… Continue reading Legacy of Courage
My husband and I were told by one of her first doctor’s that our daughter’s condition was “grave”. She was only 6 months old. When she was 13 months old, we were told she would not live passed the age of 5. For the next few years, our girlie would have hundreds of seizures a… Continue reading Living a daily funeral